In the borderland of anorexia recovery

I thought anorexia had been torn from me body and soul forever after David left.

Now he is back.

And so is anorexia.

Anorexia nervosa started creeping back a few weeks ago.

Taunting me with anxieties and fears; driving me to seek solace in dangerous places.

I look in the mirror and wonder who I am with this newly gained flesh.

I step on the scale, the relentless pursuit of thinness hovering in the back of my mind.

I know the numbers are a lie, and mean nothing without the power I give to them.

I know the path I have been on has been one of health and recovery and life.

I think of the future, and there are two alternative paths.

One is the path of anorexia and self-destruction. I fight to face the feelings stirred by recovery, but sometimes fail and use medication or alcohol to dull the inner pain. I don't want to become the victim of an accidental overdose. I want to learn how to handle anxiety so powerful it feels as if it could kill me.

The other path is one of healing and hope. It is a scary path, filled with anxieties that must be faced and food that must be eaten and weight that must gained. For I know until I reach my healthy goal weight, the anorexic thoughts will continue to nip at me and I will not be free. But I am so close to being free...

From 3-7 October 2010 journal entries.

This is the borderland of recovery. The word borderland implies a middle state of not belonging to any place or group. You are the "other." I am not yet recovered. I still sometime restrict and count calories and fight the thoughts of anorexia. I still weigh myself every day, and that number still means something to me.

Yet, I am not emaciated nor in physical danger, except for a persistent low potassium level which could impact my heart function (I also have potential heart problems from having scarlet fever. Typical for me, I try not to think about it.) But I am overall healthy and my mind is more clear than it has been for months. I know I must continue on the path of recovery. Neither my mind nor soul could handle failing this time.

Perhaps I am not failing. As I traverse the borderland of recovery, I see both many obstacles and many sources of help scattered throughout. The main obstacle is my mind and the still-obsessive drive to lose weight and become unimaginably thin again.

I am trying to discern why this thought remain pervasive. My therapist believes I am still afraid of life, and this is my way of staying safe. But the question is why am I afraid of life? I'm not sure. Sometimes life is beautiful and wonderful; the sun shines through my study window and caresses me and the brilliant leaves of orange and yellow and red fill my yard. It is a dying time, and yet reminds me that everything God creates is beautiful and life will come again.

Things are going wonderful for me in many ways. My husband and I are reconciled and are working hard to reestablish the intimacy we shared before anorexia nervosa decided to join us as a third partner in our marriage. I am working hard toward fulfilling my dream to obtain my master's degree, and I was recently admitted to the English department's writing program. This means I can pursue writing as my career, and use my skills as a writer and journalist to help people with eating disorders and mental illnesses. This means so much to me, and I am gratified in particular by one comment made by a professor reviewing my portfolio: "You have a rare gift." (She added that means she will push me hard to cultivate and hone that gift, and I might not always like what she says or wants me to do.)

I have a wonderful group of readers of this blog and recently it caught the attention of Ladies Home Journal. I am now working on a piece about my experiences with anorexia. I also will present my graduate paper on this topic at an English conference later this month, and will be interviewed by an Internet show by HealthyPlace.org next week. Finally, I am working on a presentation on eating disorders to present to students at the university, fulfilling another dream to begin to create a ministry to both present my story as a warning and help young people realize that we all different and beautiful in God's eyes and that is good.

But I'm not recovered. I am still walking through the borderland of recovery and know I can cross into either territory. At times, I feel as if I am on a very thin line and I am teetering either way. Cross one line and I am embrace life and all it has to offer. Step over the other line and I am looking at a lonely future with little hope and dreams destroyed.

My protection in this in-between state is my Lord and Savior Christ Jesus, and He guides me through the harrowing journey of recovery. He tells me I am beautiful and wondrous in His eyes when I look at my body and see fat that I want to carve out. He assures me that I am His child when I doubt myself and listen to my anxieties and fears that come of this world. He reminds me that my body is His gift and I am responsible for its care and love while I am on this earth.

I often wonder how long I will be on this earth. There are times I don't feel as if I belong here; the borderland is a lonely place and I haven't yet met anyone else wandering there, fighting for strength and recovery and wondering if s/he is the only one there. If you too feel as if you are in the borderland of recovery; if it is hard and you need an encouraging word or prayer, contact me via my e-mail on my profile.

I dream of a world where we all help each other; that not one of us becomes the Good Samaritan left forgotten by the side of the road. We all have wounds inflicted by our eating disorders and I believe we can help each other heal.

Christ Jesus is my guide through the borderland and will lead me to safety. Without him, I could not make it. But He also requires me to work hard on my own recovery. He will be there to guide me but I have to do the work, whether it means picking up the fork and eating the food or hiding from my feelings through unhealthy means.

The choice is mine. Choose to move forward and cross into the land of recovery. Or not.

Anger rising

I woke up this morning feeling as if my insides were being twisted by a malevolent force. I could feel all the food I ate churning and bubbling, a caldron ready to explode. I jumped out of bed and ran to the bathroom, hating myself and food and anorexia and all of life.

I ate like a normal person on Sunday. Then I punished myself by taking a handful of laxatives that night. What goes in must come out, right?

I am getting so sick of this. The time wasted either sitting on the toilet or trying to count each and every calorie I consume. The time spent on the scale, silently begging it to not show a triple-digit weight. The time spent sick to my stomach and sick at heart because I have failed once again.

The unrelenting pursuit of thinness.

I will never be thin enough. I read about Marya Hornbacher and her lowest weight of 57. I ached with jealously. I will never be that thin. And that hurts. Then I wonder . . . How did she do it? Could I . . . Maybe I could learn how by reading her book.


I look at the innocuous white scale, its flickering numbers ready to bring me joy or despair like a desperate gambler at a roulette wheel. Round and round the numbers go and where they land nobody knows.

And where it lands is never the right place. I hate the number no matter what it is . . .

I want to pick it up and hurl it across the room until it smashes into a billion pieces.

I look at the tiny pink pills that I slyly, quickly swallow so David doesn't see me. Yet I know laxatives don't really rid your body of calories, but instead depletes you of fluids and gives the illusion of weight loss.

My mind circles desperately, the Ana voice telling to just stop eating. You are a pig. Fat pig. You would be better off dead than the way you are now.


FAT FAT FAT FAT FAT .  . .


It never stops. I want to scream as loud as I can — Dear God, save me! Save me from all this. Take it away. I can do nothing on my own. Only You can deliver me from this ongoing nightmare.


And I fantasize about taking a sledgehammer and smashing it into the scale which has ruled my life for years.

Then I become afraid.

Who am I besides someone fighting anorexia nervosa? Who am I besides my weight? Who am I besides my body size?

My doctor asked me to think about those questions and come up with some answers this week.

I see nothing but blankness right now. My thoughts are too filled with little pink pills and a white scale. My thoughts are too filled with what more can I do to rid myself of more weight. I look up tips. Karen Carpenter took extra thyroid pills and used syrup of ipecac. Hmm...I have thyroid pills. Perhaps I should double the dose.

I draw back, afraid.

And my anger at anorexia grows.

I am so sick of this. When will I be free? When will I allow myself to be free?

For it is I who locks myself in the golden cage and throws away the key.

Back and forth ...

Recovery

Thin

Recovery

Thin


Dear God, please save me before . . . the possibilities are infinite.

The lies of Proana

My mind feels as if it were split in two by anorexia. Part of me is pulled toward eating less and losing weight. The pursuit of thinness feels so strong, ready to pull me under. But is it really being thin that I want? I don't think so.

People say I am too thin now; losing more pounds feels rather pointless and yet . . . I look at pictures of those who are young and thin; fake photos to draw me in and trap me. I will never look like that. It is a lie. I won't tiptoe between raindrops nor walk across snow-covered fields with nary a footprint.

The Lies of Proana

Il Faut Souffrir Pour Etre Belle

  (One must suffer to be beautiful)

Welcome to the world of fantasy

Where slender young women

float through life

untouched by the ravages

of their starving bodies

and

wasted minds.

Did I ever believe any of this? Do I still? Is my mind torn in two? As I struggle to eat, both believing I need to lose weight and then seeing the truth, I wonder whose mind is it, anyway? Who is in control here and am I that easily manipulated? Or am I sometimes drawn toward this fantasy world because I find it too hard to escape the reality of anorexia? I wonder ...

It is so easy to believe the lies of proana. The women pictured look flawless — smooth, delicate skin, slender bodies and glossy smooth hair. Who could resist the allure of these images?

Proana says all you have to do is not eat. Of course, not every one of these websites actually say you must starve to achieve this imaginary life. Starvation is sometimes just a whisper behind the positive posts of eating less and exercising more; of ways to avoid food and how much better you will feel the less you eat. 

Some proana sites go further, trying to make starvation sound virtuous; a state to aspire to:

 "Starvation is fulfilling. 

Colors become brighter, sounds sharper, 

odors so much more savory . . ."

LIES! I wish I could reach through the website where I found that and shake the person, yelling You are starving, that's why things seem different and strange. Starving!!! Lies which help perpetuate the downward spiral of so many women. More fulfilling??? I remember in some of my worse restrictive times I would suddenly get an urge to snatch food from someone eating in front of me. The smells and imagined taste almost were too much. And yet part of me was (is?) susceptible to this and it scares me.

The other, healthier part of me wants to break free of anorexia forever. I am tired. Tired of counting calories. Tired of worrying about every single bite I put in my mouth. Tired of fighting with my mind all the time. I struggle to maintain some semblance of a normal life and at each turn, crouching in every corner is anorexia.

Tired of thinking about a life without my husband, a life without love and joy.

The anxiety is the worse. I wake up afraid of everything. Having sex with my husband. Food. Getting out of bed. The fear that I will amount to nothing. Eating. Not eating. Facing the day. Taking a shower and deciding what clothes to wear. Completing assignments.

Nothing is untouched by anxiety. Nothing.

The other day my husband told me he was leaving unless I made a real effort toward recovery. I thought I was. I was thinking about what I needed to do, writing about it, trying to work through the fear of eating and gaining weight.

I felt I was making an effort. I was thinking about it; doesn't that count for something? Of course, I also was talking about not gaining anymore weight and possibly losing more. I feel fine, I said. Why can't I stay the way I am? Why can't I just accept I have anorexia and live with it. I could give up treatment and let things happen,

What did I expect? For David to say, sure that's fine, being under one hundred pounds is perfectly okay by me?

I'm such an idiot sometimes. I cried more that night than ever before . . .  I promised to do better and I do truly want recovery. It's just so hard and I'm not as strong as people seem to think.

Last night, I told my doctor I want one of two things — either anorexia to kill me or to be free. Anorexia nervosa purgatory just isn't working for me.

Then I had an — epiphany? A revelation? Maybe a word from God, I don't know. I suddenly thought, What if I just stopped worrying and started eating like a normal person? What would happen? Would I literally explode? Would it kill me? Or would I start becoming the person I was, only better? 

I think of the past and dream of the future, thinking of the possibility of a rich and normal life . . . 

Disconnected

I will eventually feel better, right?

Today begins my fourth week at the River Centre Clinic in Sylvania, Ohio. I am trying to learn and grow. I am trying to overcome my desire to dive back into my safety net of anorexia nervosa. I am confronting my demons and anxieties.

BUT IF I HAVE TO EAT ONE MORE BITE OF FOOD I AM GOING TO SCREAM!!!

I feel full all the time and I hate the feeling. My stomach hurts constantly and I am often nauseous. The amount of calories I eat in one day sustained me for more than four days during my most severe restrictive periods. I am eating mechanically; the concept of enjoying food is completely foreign to me. Frankly, I can't wait until bedtime when I don't have to eat anymore.

This worries me. I am still in the weight restoration phase, in which I am trying to reach what both the clinic and my doctor agree is a minimum healthy weight for me. Most likely I will not reach that weight before I return home and thus, I will have to continue to eat that many calories until I do. I also have learned from past experience that as a severe restrictor anorexic, I will most likely have to maintain a higher-than-average caloric intake in order to stay at a healthy weight.

I also hate the inflexibility of meal planning. It causes me a lot of anxiety on the weekends when I bring my meal plans home and have to make substitutions for one reason or another (mainly because our small town's grocery stores lack some of the foods on my weekend meal plan.) It also makes me feel weird to have to take my own food to social functions, like brunch at my brother's last week or lunch at church today.

It makes me feel disconnected from what's going on around me.

That is a real problem. I live in Sylvania during the week and at home during the weekends, and I often feel lost between the two places. One morning last week, I woke up and instinctively reached out for David. I was half asleep and started to panic as my hands couldn't find him. Then I realized I wasn't at home.

It really was the start of a very disconcerting week. Everyone there has their own issues, and sometimes it is harder to deal with some issues than others. I often wished I was a turtle, able to withdraw into a protective shell. I am trying to absorb such things as distress tolerance and mindfullness, or being in the moment.

But sometimes my emotions start spiraling out of control and it becomes hard to calm myself down. My anxiety can reach such a high peak I feel either like I am going to die or I want to die. The only other outcome I can envision in these moments is me literally exploding.

I have decided I need to change some things about myself in order to both recover and live (as oppose to just existing.)

I cannot let people push my buttons. The week also started with an anonymous comment that said in effect that I was not that thin and I am an Ana wannabe (I deleted it, as I will delete all comments that I deem are triggering to either myself or people who read my blog.)

But I allowed that comment to stay in my head and the eating disorder part of my brain had a field day with that, constantly whispering that this person was right and what I really needed to do was go home and lose more weight.

So I veer between feeling disconnected from my body (am I too thin? or do I need to lose weight? who is right? why can't I see the reality of my physical being?) and trying to trust those who tell me I need to remain in treatment and that I have not yet reach a healthy weight.

Trust. Who can I trust when I can't trust my own eyes nor my own thoughts at times?

It's a very confusing time.

"You are so much more than your body size."

"You are so much more than your body size," my doctor said to me today.
I sat there quietly, thinking about that remark. What does he mean? Who am I? Who was I? Unwanted tears — God, I hate being weak; I used to be so strong — threatened to spill as I thought about who I might be besides my body size.

"You have so much to give to the world," he continued.
I felt confused. What do I have to give to the world? The world has demanded that I be thin and I have become very good at accomplishing that. What more does the world want from me? How thin do I need to be to be THIN ENOUGH? But I knew that's not what he was talking about.

"In spite of everything, you are still reaching out, trying to help others," he said. He mentioned my gift for writing, and how I still try to help people understand anorexia and those who suffer from it through my words.
"But what about helping Angela?" he asked
Sadness filled me, and I whispered, "I don't know."
I then confessed that I felt guilty about going to Renfrew in May; that I feel like I have failed him. Failed by not recovering.

I was supposed to be the shining example of recovery. Everyone said so when I entered Beaumont Hospital in August 2008. I had only been battling anorexia for about a year. I readily agreed to the TPN line, feeding nutrients to my heart and body. I ate everything they put in front of me, and after my first-day meltdown, I kept my mouth shut and adopted a passive-aggressive approach to treatment. I didn't know then I wasn't helping myself; I was just marking time until I could get out of the hospital and start starving again.

Several nurses and fellow eating disorders patients were very impressed by my supposed motivation, not realizing I felt as if I were dying on the inside and wanted to rip the TPN right out of my body. One nurse knew I would I would go home and continue to eat, become weight-restored and then put anorexia behind me. Ipso facto, it would be as if I never even had the illness. One patient said most anorexics don't fully recover, but that I was different because of the short duration of my illness and that I would be Dr. Sacekyfio's success story; the one who made it, the one who recovered and made all his hard work and dedication worthwhile.

No one can live up to those kind of expectations, and I started failing almost from the day I walked out of Beaumont on that sunny, warm and windy day in September 2008. I was restricting again within a week. I didn't understand why after having just spent two weeks in the hospital trying to get better, and I truly did want to get better. And yet I didn't want to get better. I wanted both — to be thin, thin as society admires; and yet recovered and back to my self. What did they want from me, anyway? I was thin, wasn't I? Thin enough? What else could I do?

I remained confused throughout that fall and winter, fighting to recover and sabotaging every effort I made. I would eat a sandwich, only to take laxatives. I would write, hoping the words would help save me. Then I would throw away my lunch.

And I would often think of what everyone said and thought that I was supposed to be the one who recovered. My mind was swirling all the time; the words recovery and anorexia and failure taunting me until one December evening, I couldn't stand it any more and cut myself in anger.

I had failed. I was under 100 pounds again. I was afraid of food, and my panic attacks were increasing every day. I couldn't even sit at the computer and write a simple news story without my heart racing and thinking I was a failure.

I did not become the shining example of recovery. Instead, I was filled with almost uncontrollable anxiety and a strange heaviness which had nothing to do with weight. I struggled each morning to get out of bed for work and I dreaded each word I had to write.

The unthinkable had happened. My refuge, the one thing I had always been able to count on, my writing, my gift, the essence of my soul ... became a hated thing. I had once thought I'd rather lose anything except being able to write, and now I was losing everything and my ability to write.

I checked into Beaumont several days after Christmas 2008, the first of five psychiatric hospitalizations between that one and February 2009, mainly triggered by anxiety and fear of food and weight. I could find no peace; no solace in writing, no connection with God. I had failed, and I knew it and I blamed myself for having anorexia and I would scream inside myself to stop, just stop, can't you quit being so freaking sick and weird for once?

I agreed to take a low-dose of Seroquel in February 2009, during the last of my five hospitalizations. It calmed my anxiety, allowed me to sleep and rest and write. I also was treated for severe anemia, returning to work after almost three months sick leave.

I weight-restored during those months of sick leave. It was the worst time of my life. I hated food, I hated feeling full, and I hated every pound I gained. But I also began to feel as if I were returning to life, and that maybe recovery was possible. I felt confident enough to leave work and go to graduate school, and even though there were some rough spots, I enjoyed learning and the new challenges. I was able to stop taking Seroquel in October 2009, and my Ativan dose was down to less than two milligrams a day.

January 2010. Everything fell spectacularly apart, recovery exploding into a million shards. I couldn't get the thought out of my head that I didn't deserve to eat, that I didn't deserve food. I immediately cut my calories down to about 300 each day. I threw away food my husband made for me, and began to engage in some really strange behaviors, such as eating one or two grains of rice at a time and ripping my lunch meat into tiny shreds. I couldn't (and still can't) pick up a whole sandwich and bite into it; I had to deconstruct it into a million pieces until much of it was inedible.

Then I discovered proana sites and joined several of them under the alias Ana Magersucht. (See "Grace and the death of Ana M" for more about this.) I started — but never wrote a word — a proana blog, and posted about my drive for thinness on several proana sites. I dived in headfirst, part of me determined to enter that black hole and never come out.

"You are more ill now than you were two years ago," my doctor said one January day this year, as he tried to convince me to go back into the hospital. He was particularly concerned about the alternative, proana Facebook personality I had created and my total immersion in all things proana and my philosophy that I should remain anorexic forever. After all, losing weight and being ill was what I was best at, right?

I went back into the hospital in February, this time connected to a NG feeding tube because my ketones were high, my potassium was low and I was literally starving. I couldn't think, and didn't care. I had failed again.

I asked him how he can tell I am restricting and struggling before I even say a word. He replied my whole demeanor changes. He is right. I become a different person, one with little hope. A person who feels drained and tired and ready to give up. But, as he always reminds me, I am not a quitter. I never completely give up, or else I wouldn't continue to make my weekly, two-hour (one-way) trips to meet with him each week and I wouldn't be planning on entering Renfrew's 30-day program in May.

It's lucky for me that I have a doctor who is even more stubborn than I am. For every argument I present stating why I can't get better, he is able to come up with ten arguments to give me hope that I can get better.

"You are so much more than your body size."

Those words continued to echo through my mind as I rode home. I looked at my too-thin face, the emaciation beginning to show. I wonder who I am besides my body size. But I am ready to find out, and I am trying not to feel like a failure. I'm trying to think of recovery not as a finite destination, but as a lifelong journey that will take me first to weight restoration, then guide me to health and self-esteem, and finally to joy.

"You are so much more than your body size."

Thank you. Someday, I will believe those words and I vow to teach that same idea to others. Because in my heart, I want to believe we all are so much more than our body sizes.

You could be happy ...

It's starting again. I want to be thin — so thin that I feel no pain.

I feel like everything has been taken away from me — my job, my identity, my life.

The only way is back. Back to where I was oh so close to the 80s. Why did I let them make me better? Because it's only made me better on the outside.

On the inside, I feel like I'm dying. So the outside needs to match the inside.
It's the only way.

Maybe I can regain what I've lost. Maybe I can be me again.

A new identity

Some days, recovery feels like a loss of my identity.

I was so used to my too-thin body. I secretly loved the sharp, protruding bones; flat, smooth stomach and incredibly thin legs.

But anorexia almost killed me, and since March, I have worked hard every day to gain and then maintain a healthy weight. And Ensure after Ensure, meal after meal, the pounds came on. First one or two, then finally about 15. I was at a normal weight, albeit at the low end of the spectrum.

Curves came back. My stomach is no longer flat, my thighs seem huge, and every day, I struggle with this new body. It still feels foreign.

There's no going back, now that I'm in the midst of recovery. There were many days I didn't think I could recover. There are other days that I look longingly at a too-thin woman, knowing that was me just a few months prior.

I sometimes still long to be that thin, but I know it would kill me at some point. I decided I had to choose - live, or die from anorexia.

And so I relish in this second chance. This second chance with life, and my husband. This second chance to continue in my career as a writer. And most days, that's enough.