Lost hope

This is hard...but, I've been struggling with depression for several months now. It started slowly, insidiously; sneaking up on me. Little forays into my happiness, striking at my self-confidence and laughing at my hopes.

I am happy.
Happy.
But...you don't deserve to be happy.
Why not?
Because.

The sun is shining and I am embracing it, twirling around.
My heart soars
Life has never been better.
I can do anything.
Anything.

I have finally become free...

That is what you think.
Icy streams surrounding me
Slowly choking out the happiness
Blackness filling my days

But....I was happy.

For weeks, I've struggled with everything.
First, eating. I'll either not eat, or not eat healthily.
It is if I don't deserve full nutrition, full recovery.
I don't want to always think about food.
Guilt.
Shame.
Aggravation.
FAT.
It is weird. Sometimes I can eat without free.
But then FEAR comes roaring back.
Each.and.every.time

Then there is this thing called life.
Cleaning. Laundry. Bills. Answering e-mails. Grocery shopping. Talking to people. Calling family. Visiting. Attending church. Volunteer work.....
AHHHH!!!
I can't do this.

So I stay up until 2, 3, 4 a.m.
Too afraid to got to bed.
Mindlessly wandering the Internet.
No thoughts.
It feels like a binge.
A binge of the online world.
Designed to cross-circute my emotions.

Emotions?
Do I even have any?
Why can't I cry?

Oh, I will sometimes squeeze out a few hypocritical tears.
Look, I am crying. I feel sad. I feel...
Numbness.

So I isolate.
This passive-agressive approach to life at full-tilt.
My cell phone voicemail full.
A week's worth of mail stuffed inside the mailbox.
Does the mailman think I'm dead?
Does he even notice?

Days sat huddling in my house,
I am embarrassed to be in my nightgown at 2, 3 in the afternoon.
I wish I had a drink.
Or two.
Or three...
Then I could oh-so-fashionbly sip my glass(es) of wine while twirling said nightgown.
I wouldn't be a loser, then.
Instead, I could say that something important kept me up and by God I deserved to sleep until noon, 1, 2 p.m.!
And the wine would seductively slide down my throat.

I sometimes miss starving.
The feelings of emptiness.
Dizziness.
Heart racing.
Sick, isn't it.

Sometimes I think if one more person tells me I look good, I'm going to fucking scream.
Look good=you're fat
I mean, does anyone ever ask someone if she has gained weight?

I sit, hopeless, in front of my computer.
Too scared to move.
Frozen.
I want to throw myself on my knees and beg God to take this feeling away, take it all away and open me to new life.

A life that is tantalizingly out of reach.
My fingers hovering, trying to grasp it before it falls apart.

Love
Worthwhile work
Friends
Family
Laughter

I feel unworthy. Lonely. Full of hopelessness.
I admitted that to my psychiatrist the other day (of course after he already called me out on it.)

I feel as if my dreams have fallen apart.
Damn it, I'll just admit it — I am envious of women whose spouses have stood by them, whose husbands cherish and love them...till death do they part.
Husbands who have KEPT their vows, who believe that the words meant something, not just to be thrown away like so much trash, like scrapping gum off of the bottom of a shoe.

What is wrong with me???
Why can't I inspire that kind of devotion?

Will love ever be a part of my life again?
Romantic love, I mean.

And...will laughter and happiness and fulfillment and all the hopes and dreams that threaten to bubble up and overwhelm me ever become part of my life?

In the meantime, my world continues to crash around me. Dishes are again piled in the sink. Laundry is half-done. The upstairs needs to be vacuumed. Three weeks worth of garbage sit in the garage. There are piles everywhere.
I mean, where does this crap come from, anyway??? Is there a clutter fairy who drops off junk at my house at an alarming rate?
Books. Books everywhere.
I mean, I love books. But I don't love tripping over them every five seconds.
Bottles of nail polish on my desk, clothes piled on the dryer, threatening to topple. The spare bedroom crammed with an overturned Christmas tree, complete with bulbs still attached.
My bicycle remains untouched, my bow and arrow no longer getting any practice time.
Months worth of vestry minutes untyped.
You get the picture.

Then, I sleep until 10:30 a.m. on Friday. The day I need to drive more than two hours to my psychiatrist's office.
Who needs nine, ten hours of sleep?
I do.
Because sleep has become my escape.
Really, I would stay in bed all day if I felt like I could.
Nothing can touch me when I'm in bed.
Sort of like nothing could touch me when I had anorexia.

I miss...
I miss me.
Me.
I feel as if I want too much.
Please God, are my wishes and dreams unattainable?

I know that only I can move forward and reclaim my life.
Then why is it so hard?

I want more...

June Blogger Challenge: Day 18 — Laughter

For years, laughter was buried deep within me. I went through the motions, giving an appropriate smile here and there. But I didn't feel it.

You see, the icy shell of anorexia was virtually impenetrable. Love and laughter and hope could not reach me. Anxiety and depression and fear choked out laughter, and I felt as if I was losing my soul.

Because laughter is the soul of humanity. Through laughter, we connect with others. Through laughter, we become whole. Through laughter, we are freed.

But laughter requires nurturing, or else it will wilt and slowly die.

As it almost did within me.

Now I laugh easily with friends and family. We gather together, share jokes and stories, engaged and alive. Silly things, really. It is beautiful to look at others and see them laugh, truly laugh, and feel the joy that permeates throughout.

God, I have missed laughing!!!

Now I feel joy, and I laugh. I laugh, and I can breathe again.

Freedom (One month)

One month ago I reached my healthy goal weight.

One month ago I really began to believe that full recovery from anorexia was possible.

One month ago I was so proud of myself I called my psychiatrist to tell him the good news. Dr. S later said that was when he first heard a change in my voice. He heard freedom in my voice. And although there have been ups and downs during the past month, that sense of freedom is becoming stronger each day.

Freedom. 

That is my ultimate goal. Complete freedom from anorexia.

And I believe it can happen.

I remember when Pam weighed me at her office (I have put away the scale and my therapist monitors my weight.) I was fairly certain I had reached my goal weight because I could feel my body changing as I gained. My hips were becoming rounder and my breasts were fuller. My stomach - and this is the only part I struggled with - curved out a bit. I would look in the mirror at my slender, yet womanly figure and I was fine with it.

I didn't hate my body. I didn't feel any urges to restrict or lose weight. I wasn't disgusted by what I saw. I didn't argue with my doctor about the weight he said I needed to be at as I had in the past.

I felt free.

My anxieties about food and life began to dissipate and I felt as if I could finally breathe because I was no longer trapped by anorexia. Its hold had finally been broken.

It has been an emotional month. There are times that anxiety broke through, and I was disappointed to have lost that strong feeling of freedom. Then I realized that I had added too much sugar to my diet and as a hypoglycemic, I was crashing every time I had too much. So I re-worked things to include more protein and natural sugars, and less of the high fructose processed variety. I learned how different foods could make me feel better or worse, and how to eat properly while still including an occasional treat that I enjoyed.

This whole recovery has been a work in process.

I expected to have significant body image issues, but I haven't. I look at my body and I am still fine with it. I look at pictures of me at my thinnest; emaciated and looking like I could die at any moment and it is like looking at someone else.

I felt the same way when I read blog posts from last year. I wonder why I would ever think that remaining anorexic was a viable goal?  (I actually suggested this was what I wanted to do many times last year. No wonder my husband became frustrated and hopeless. He was dealing with someone who was completely illogical, but I didn't see that I was and nothing got through to me. I felt that the idea of living with anorexia was a perfectly good one. Unbelievable.

My body continues to move and shape as I enter my second month of recovery. I am told things aren't completely settled yet, and that could take some time. 

I have had to learn patience through this journey, and that has been hard. I never have been a very patient person. I believe God is trying to teach me ...

I am still emotional, and my doctor says that is normal at this stage of recovery. I know I am also emotional because of the uncertainties of life, including the relationship between David and I. This I know: we love each other very much and miss each other like crazy. We both have fears, and will need to work through them. Anorexia has left scars on both of us.

And we will see each other next Saturday for the first time in two months. I think about seeing my beloved's face again, and my breathe catches in my throat my anticipation is so great. I know I will cry, and then . . . It has been a long two months. I pray for this new beginning for us, and firmly believe we will be reconciled and able to put this behind us.

Because I will never go back. I will never re-enter that prison that is anorexia. It would kill me. Recovery  tastes too sweet to want to go back. 

Freedom. That is what I am aiming for — complete and total freedom from anorexia. A full life with David, growing old together in love and joy. An interesting and useful career using my writing and other talents. Becoming closer to my God so that it is His light that shines through me, and people will know He allowed me to be set free.

Freedom.

Believe and it will happen . . .

Shedding the ED Identity

I am Angela.
I am not anorexic.
I am not a bad person.
I refuse to place labels on myself anymore.
I no longer hate my body.
I am learning to love myself.
I turn to my God in times of need and blessings.
I am in love with my husband and my friends and my family and all that life has to offer.
I am shedding the eating disorder identity.
I am no longer the woman who felt the most important thing about her was her weight and body size. I refuse to be that person. The only way to full recovery is to believe it can happen, and then go through the process.
Anything less than believing this is selling myself short.

Several people have questioned what they see as a dramatic change in me within only a few weeks. One person wrote, "How can it be that easy?"

No, it wasn't easy. It was hard and full of pain and tears. I often got down on my hands and knees and begged God to take away the anxiety and pain of recovery, of being separated from my husband, of the loneliness I felt as I ate most meals by myself.

But I have chosen to be positive. I have many blessings. My husband and I are talking and growing closer again, and we both acknowledge our love for each other. I have no idea about the future, but I do believe love will prevail in the end. I am determined to live a life of joy and happiness, free of anorexia and all its fallout. I feel one way to do this is to envision the type of life I want.

I remember my last attempt at recovery in the fall. At first I was very positive. But then I slowly slid back into anxiety and depression, and of course I used that to start restricting and losing weight. Before I knew it, I was again enmeshed in anorexia.

You see, I did have a rather romantic view of anorexia. Several people accused me of romanticizing anorexia, and of course I vehemently denied these accusations.

But I was wrong. My malnourished brain didn't realize that I was addicted to anorexia and the whole eating disorder identity.

This time around, I knew I had to do something different or recovery would always remain just out of grasp. I also knew that if I didn't recovery that I could die of anorexia. It was no longer romantic and airy-fairy, floating through life as a feather. It was about pain and suffering and death. And that death would most likely be slow and painful, not the quick heart attack I had imagined.

So I decided that this time I would stay as positive as possible. I would focus on the positive aspects of recovery — the lessening of anxiety and depression, being able to think clearer, the fact that I could focus better on writing and studying.

But it wasn't easy. I cried at many meals, and in the beginning I struggled with eating and drinking about five times more calories than what I was used to.

But I never stopped eating. Not once. Even when I felt so much emotional pain that I asked myself if giving up anorexia was what I really wanted to do. The answer was always, "Yes!"


This is because I simply decided I wanted a real life. Not a life of counting calories and worrying about every bite I put in my mouth and being constantly hammered by the eating disorder voice within my brain that I shouldn't eat, that I didn't deserve to eat.

I wanted out.

I don't have those thoughts anymore. I don't call myself anorexic. I say I am recovering from anorexia. I have reached my goal weight, and I look at my new figure and I rather like it. I look like a woman, not a starving person on the edge of a breakdown.

I am not that person anymore. And I never want to be again.

The Circle of Recovery

Sometimes I will be walking across campus to class or through the local mall, I will see someone who reminds me of myself as I was about a year ago. She is emaciated and often seems hyperactive, as if she can't stop moving and she's running towards somewhere she can never find. She will have a fleeting look of despair in her eyes, and I always wish there was something I could do or say to help her. If I could, I would take her hand and lead her toward a private place where we could talk and I would say, "You can get better. You don't have to live your life of fear and anxiety anymore."

But of course in this world, we don't take strangers by the hand and start talking to them about healing and recovery. That is too bad, because I wish somebody would have taken me by the hand last year and said, "You can recover." Of course, both Dr. S and my husband did say those type of things to me many times. So what makes me think I would have listened to a stranger? But perhaps I would have listened to a stranger who had been through the same things I was feeling. I will never know, just as I can't make that final step to reach out to a total stranger.

However, I did reach out in a way. Last year, I wrote several posts about the dangers of anorexia on a pro-anorexia site. I was completely trashed by the site's author and many of her readers, and I felt that my posts were probably just empty echos into cyperspace. But sometimes a word or two can fall upon the right person and just maybe you can make a difference. I recently found out that my warnings did make a difference to a young woman who had recently had a baby. She had gained weight and was desperate to take it off, and started looking to pro-anorexia sites for tips to lose weight more rapidly. She began to get sucked into the whole mindset of becoming a size 0, and it seemed as if she would soon become trapped into the whole anorexic mindset.

Then she came across my posts, which basically stated that being a size 0 wasn't all it seemed, and that indulging in anorexic behaviors was like playing with fire. I wrote about how anorexia was destroying me mind and soul, and this was even before things really started to fall apart. My posts led her to this blog, and this is what she recently wrote in part: "I think I was borderline of developing a problem, but it was your posts (and) then reading your blog that showed me I was playing a nasty game." She talked with her doctor and started losing weight the healthy way, and a potential crisis was averted.

I've been thinking about this because I have been thinking about all of you who read my blog and have left me encouraging and kind comments when I was at my worst and now that I am getting better. It is like you are the stranger who reached across and took my hand, saying "Yes, you can do it. You can get better."

I want to thank all of you for your support. I have cherished it, and it has made these difficult days just a little easier knowing so many people are praying and hoping for my complete recovery.

I won't let all of you down. I have no desire to return to anorexia. In the past, when I would look at these women, I felt a twinge of envy. Now all I feel is pity. Recovery is almost like I died and was resurrected. I feel like I am becoming a better person, one ready to face the future and is excited about it. It doesn't mean I don't still get anxious or depressed. It means that I face life, deal with it in the best ways I can, and continue to eat no matter what.

And it also means a life of love and joy and happiness, and I pray this includes my husband, David. I believe in the end our love will see us through, and I believe we both have so much hope. I just have to be patient, and patient with recovery as I discover new and exciting things about myself. None of this can be rushed, and I will enjoy all of it; returning to life, reconnecting with my husband and friends, learning and growing in graduate school, everything that I missed for so long.

Freedom...It tastes so sweet, and it has been so long in coming. Perhaps it is sweeter because it has taken me so long to want full recovery, to really work at it like I mean it.

I am going to make it. I just know it.

I am going to be free. And someday, I hope to reach out my hand to someone else and whisper, "You can be free, too."

De-romanticizing anorexia (Ten Days)

"Many miles many roads I have traveled / Fallen down on the way / Many hearts many years have unraveled / Leading up to today." Madonna, "I Deserve It"

I sit here and think that in ten days, you could be home and real life can begin again. I have been half frozen without you. I have been cold and lonely, and I have cried many tears while on my knees begging God to bring you back to me.

But . . . I have survived. I have not sunk into despair nor have I turned to anorexia for solace. I have fought hard and emerged victorious with each bite of food and drink of Ensure Plus.

I have survived, and at times even felt joy and happiness. The wind and the sun have blown through my hair, the fading warmth of fall a promise of a better tomorrow. I am able to dream again, and in those dreams are you and I, one once more, healthy and happy and content, learning and loving and growing in this life.

At first, I railed against this separation. That is lessening as I realized that each one of us face many things throughout the years, and this is what God has chosen me to face at this time. It has hurt and has made me cry and become angry, and perhaps that is what I needed to do.

At first, I was angry with God. I didn't really understand and I was caught in a maelstrom of emotions and pain as I contemplated a future without you.

Then hope was offered. I began to believe we would have a future together. I didn't know when, and that was hard, but with each kiss I felt your love and longing, and remembered your promise.

Now I am beginning to understand why I needed to go through this. I needed to learn I could survive and recover from anorexia, that I have the internal strength and that it won't kill me if I only draw upon that strength and fight back.

I needed to learn that recovery from anorexia nervosa is a lifelong process. I will constantly need to draw upon my strength and resources to fight and overcome this inexplicable and evil disease.

I have survived. No one can ever take that away from me. Anorexia cannot take that away from me. This part of recovery, this victory, is mine.

This doesn't mean I don't need nor want your support. It will be ... My breath catches in my throat and my heart races as I think of it ... for us to be together again, to hear your encouragement as I continue to move forward in this journey.

But in the end, it is my fight and I will need every ounce of internal strength to win. Anorexia is a formidable foe and doesn't give up easily. But I will recover and learn to laugh and dance and love myself again.

For too long, I gave up fighting for myself. I started to believe I really couldn't recover and that was okay. I began to believe lies, lies that told me I was not worthy nor able to recover, lies that said I didn't deserve to eat, lies that enticed me to forever become thinner. Lies that I allowed to define me solely based upon a number on a scale.

I have learned since you have left that numbers mean nothing and that anorexia was really in control. There is nothing beautiful or graceful or delicate about being emaciated and starved. I have looked at the pictures, at my stripped-down arms and stripped-down body and no longer wonder why you were so afraid and frustrated with my belief that was an acceptable way to be and live.

But I wasn't really living.

I did romanticize anorexia, as much as I denied it. I was caught in a web and couldn't find the weapon to cut myself free. And therefore I moved forward, trying to escape and yet feeling so trapped ... I felt as if I were in a jail cell, left forgotten and broken, left to die.

Every morning I prayed to God to either release me or let me die. You see, I couldn't live with anorexia anymore. I wanted out and I believed the lie that only death would free me.

The lion's share of my anger has been directed and aimed at anorexia. It is evil and has destroyed so many lives. It took almost everything from me; body, soul and spirit. It has scarred our lives and me and for that I am sorry.

I struggle not to cry as I write this. It feels like it has been a long journey toward wanting to live and recover from anorexia. To move from one mindset to another in the space of two weeks is both exhilarating and exhausting, and my emotions have veered from despair to hope and everywhere in between.

It has been two weeks since you left, and each night I still turn and reach out for you. You are not there, and yet this morning hope entered my mind and whispered soon, soon . . .

And I smile. 

"You are so much more than your body size."

"You are so much more than your body size," my doctor said to me today.
I sat there quietly, thinking about that remark. What does he mean? Who am I? Who was I? Unwanted tears — God, I hate being weak; I used to be so strong — threatened to spill as I thought about who I might be besides my body size.

"You have so much to give to the world," he continued.
I felt confused. What do I have to give to the world? The world has demanded that I be thin and I have become very good at accomplishing that. What more does the world want from me? How thin do I need to be to be THIN ENOUGH? But I knew that's not what he was talking about.

"In spite of everything, you are still reaching out, trying to help others," he said. He mentioned my gift for writing, and how I still try to help people understand anorexia and those who suffer from it through my words.
"But what about helping Angela?" he asked
Sadness filled me, and I whispered, "I don't know."
I then confessed that I felt guilty about going to Renfrew in May; that I feel like I have failed him. Failed by not recovering.

I was supposed to be the shining example of recovery. Everyone said so when I entered Beaumont Hospital in August 2008. I had only been battling anorexia for about a year. I readily agreed to the TPN line, feeding nutrients to my heart and body. I ate everything they put in front of me, and after my first-day meltdown, I kept my mouth shut and adopted a passive-aggressive approach to treatment. I didn't know then I wasn't helping myself; I was just marking time until I could get out of the hospital and start starving again.

Several nurses and fellow eating disorders patients were very impressed by my supposed motivation, not realizing I felt as if I were dying on the inside and wanted to rip the TPN right out of my body. One nurse knew I would I would go home and continue to eat, become weight-restored and then put anorexia behind me. Ipso facto, it would be as if I never even had the illness. One patient said most anorexics don't fully recover, but that I was different because of the short duration of my illness and that I would be Dr. Sacekyfio's success story; the one who made it, the one who recovered and made all his hard work and dedication worthwhile.

No one can live up to those kind of expectations, and I started failing almost from the day I walked out of Beaumont on that sunny, warm and windy day in September 2008. I was restricting again within a week. I didn't understand why after having just spent two weeks in the hospital trying to get better, and I truly did want to get better. And yet I didn't want to get better. I wanted both — to be thin, thin as society admires; and yet recovered and back to my self. What did they want from me, anyway? I was thin, wasn't I? Thin enough? What else could I do?

I remained confused throughout that fall and winter, fighting to recover and sabotaging every effort I made. I would eat a sandwich, only to take laxatives. I would write, hoping the words would help save me. Then I would throw away my lunch.

And I would often think of what everyone said and thought that I was supposed to be the one who recovered. My mind was swirling all the time; the words recovery and anorexia and failure taunting me until one December evening, I couldn't stand it any more and cut myself in anger.

I had failed. I was under 100 pounds again. I was afraid of food, and my panic attacks were increasing every day. I couldn't even sit at the computer and write a simple news story without my heart racing and thinking I was a failure.

I did not become the shining example of recovery. Instead, I was filled with almost uncontrollable anxiety and a strange heaviness which had nothing to do with weight. I struggled each morning to get out of bed for work and I dreaded each word I had to write.

The unthinkable had happened. My refuge, the one thing I had always been able to count on, my writing, my gift, the essence of my soul ... became a hated thing. I had once thought I'd rather lose anything except being able to write, and now I was losing everything and my ability to write.

I checked into Beaumont several days after Christmas 2008, the first of five psychiatric hospitalizations between that one and February 2009, mainly triggered by anxiety and fear of food and weight. I could find no peace; no solace in writing, no connection with God. I had failed, and I knew it and I blamed myself for having anorexia and I would scream inside myself to stop, just stop, can't you quit being so freaking sick and weird for once?

I agreed to take a low-dose of Seroquel in February 2009, during the last of my five hospitalizations. It calmed my anxiety, allowed me to sleep and rest and write. I also was treated for severe anemia, returning to work after almost three months sick leave.

I weight-restored during those months of sick leave. It was the worst time of my life. I hated food, I hated feeling full, and I hated every pound I gained. But I also began to feel as if I were returning to life, and that maybe recovery was possible. I felt confident enough to leave work and go to graduate school, and even though there were some rough spots, I enjoyed learning and the new challenges. I was able to stop taking Seroquel in October 2009, and my Ativan dose was down to less than two milligrams a day.

January 2010. Everything fell spectacularly apart, recovery exploding into a million shards. I couldn't get the thought out of my head that I didn't deserve to eat, that I didn't deserve food. I immediately cut my calories down to about 300 each day. I threw away food my husband made for me, and began to engage in some really strange behaviors, such as eating one or two grains of rice at a time and ripping my lunch meat into tiny shreds. I couldn't (and still can't) pick up a whole sandwich and bite into it; I had to deconstruct it into a million pieces until much of it was inedible.

Then I discovered proana sites and joined several of them under the alias Ana Magersucht. (See "Grace and the death of Ana M" for more about this.) I started — but never wrote a word — a proana blog, and posted about my drive for thinness on several proana sites. I dived in headfirst, part of me determined to enter that black hole and never come out.

"You are more ill now than you were two years ago," my doctor said one January day this year, as he tried to convince me to go back into the hospital. He was particularly concerned about the alternative, proana Facebook personality I had created and my total immersion in all things proana and my philosophy that I should remain anorexic forever. After all, losing weight and being ill was what I was best at, right?

I went back into the hospital in February, this time connected to a NG feeding tube because my ketones were high, my potassium was low and I was literally starving. I couldn't think, and didn't care. I had failed again.

I asked him how he can tell I am restricting and struggling before I even say a word. He replied my whole demeanor changes. He is right. I become a different person, one with little hope. A person who feels drained and tired and ready to give up. But, as he always reminds me, I am not a quitter. I never completely give up, or else I wouldn't continue to make my weekly, two-hour (one-way) trips to meet with him each week and I wouldn't be planning on entering Renfrew's 30-day program in May.

It's lucky for me that I have a doctor who is even more stubborn than I am. For every argument I present stating why I can't get better, he is able to come up with ten arguments to give me hope that I can get better.

"You are so much more than your body size."

Those words continued to echo through my mind as I rode home. I looked at my too-thin face, the emaciation beginning to show. I wonder who I am besides my body size. But I am ready to find out, and I am trying not to feel like a failure. I'm trying to think of recovery not as a finite destination, but as a lifelong journey that will take me first to weight restoration, then guide me to health and self-esteem, and finally to joy.

"You are so much more than your body size."

Thank you. Someday, I will believe those words and I vow to teach that same idea to others. Because in my heart, I want to believe we all are so much more than our body sizes.